Photographing 15 Faces of Baby Loss - Justine Raja

Joanne Lewis • 13 October 2019

Six years on, I have found what many bereaved parents call a ‘new normal’

Baby Loss Awareness Week is important not just as an opportunity for bereaved parents to talk about there children and help break the taboo surrounding this most heartbreaking subject, but also to help bring the topic to light with doctors, nurses and hospitals so that they can learn from past errors in care and reduce stillbirth and neonatal death rates in the future.

Justine Raja is an incredible woman, beautiful soul, and has done so much not just to help me and other people from SANDS, but also helping raise awareness in the wider medical community.

Please read the story of her 4 pregnancies, and the beautiful girl Violet she never brought home.
Justine and her youngest son Abel
I have had a positive pregnancy test result four times in my life. Each has been under different circumstances and each has resulted in very different emotions. When I saw the words “Pregnant 3+ weeks” on the digital test I took in autumn 2012, the overriding feelings were “how on earth am I going to cope with a newborn when I’ve got a baby and a toddler”. I am the middle of three daughters, and had I ever actually sat to plan it, I probably would have said I would ideally like to have three children too. The feeling of panic did pass, and when we learnt that our third child was also a girl, there was a sense of things falling into place, albeit a little sooner than either of us had thought. Oh and there was still quite a bit of panic.

Eliza was four and Celia was one. I knew how to be pregnant, how to give birth and how to have a newborn baby in the house. We didn’t discuss names, we didn’t shop for anything. We could do all that closer to the time, and we had everything already anyway. Even after a bleed at 35 weeks, which the midwives could not really explain, I was confident that the extra precautions they took as a result were enough for me and my baby. 
In the very early hours of 5th April 2013, a similar bleed woke me up. Being almost 39 weeks pregnant at this stage, I took my hospital bag, the baby car seat and went off to hospital thinking they might not want to send me home this time, not being so close to my due date. I left my husband and the girls sleeping at home, why disturb them when he could just come along later when it just be more practical, it’s not like I was actually in labour yet. 

I arrived at the labour ward at PAH. After being told pointedly by the well-meaning staff that I should have called ahead, they asked me whether I had felt the baby move today. In my state of tiredness and confusion, I was actually thinking about the day before when I answered confidently that yes, I had. And of course, why would my baby have stopped moving? I was on the bed as the midwife searched for the heartbeat, which she found, then lost, then found again. At some point, the realisation started to dawn that it had been my heartbeat she had heard all along, and after that, there is a dark and noisy blur in my mind when I think about the details. There was no heartbeat, she was dead.
 
Our families were told, doctors explained how things would proceed. I knew they wouldn’t offer me a c-section. I knew (and remember wondering how on earth she’d done it) that Gary Barlow’s wife had given birth to their stillborn daughter Poppy not many months before, and this is what I would have to do too. I was given a bright blue pill (to soften the cervix), and then we went home for a few hours, mainly to see our daughters and try to explain that their baby sister had died. There was still the risk of further bleeding so we were to return that evening to be induced. 

We went to M&S to buy an outfit, not to take our daughter home in but to bury her in. We considered options of cemeteries rather than setting up her Moses basket. We discussed the best way to communicate the death of our baby to all those waiting to hear of her birth. My husband found out online that we should take as many photos of her as possible, and that there were different pain relief options available when the welfare of the baby was not a concern. There was not a shred of hope or chance of a miracle. But we were looking forward to meeting her.
Justine with her Rainbow baby Abel
Early in the morning of 6th April 2013, Violet Serena Raja was born in the peace and quiet of the Chamberlain Room at Princess Alexandra Hospital. The birth was mercifully straightforward (I was right in one respect, my body does know how to give birth) and our fears that she would look damaged or in pain were also mercifully unfounded. Violet was perfect and so like her older sisters. My body had kept her warm and she was soft, with dark hair, a tiny nose and lovely lips. We smiled, we were proud, and we loved her with the profound love familiar to all parents. But the silence in the room when she was born was just awful. The feeling when she didn’t cry and when I saw her lifeless body were unbearable. Until my dying day I will not be able to think on those things without feeling physical pain. She was still, she was silent and she would never open her eyes to see everyone who loved her so much.

We spent precious hours with Violet. She was washed and dressed, and cuddled by her grandparents, aunts and uncles, and also by the hospital Chaplain who held a naming ceremony for her. We were given a memory box, and we had handprints and footprints taken, and a small lock of her black hair. Her little body had started to change, she no longer felt warm, and we knew we needed to say our final goodbyes.
We held a funeral for Violet, and were so grateful that many dear friends were able to come and share her short life with us. We escaped down to Cornwall for a break before returning to the routine of work and school that couldn’t be avoided. Some nights I had terrible dreams. Some mornings I would wake up confused, was I still pregnant? Had I never been pregnant? But I got up and made breakfast for my living children. Life went on, because that’s just what it does. We got through the day. Not because we were superhuman, or even strong, but because there was simply no other option. 

Violet’s death certificate says ‘placental abruption’. We found out that the first bleed had most likely weakened my placenta, and the second bleed was too much and Violet’s oxygen supply would have been immediately cut off. She would have felt no pain or fear, one tiny consolation in a lifetime of what ifs.
Birthday celebration for Violet by her family
Quite soon I began to feel a real need to talk to people who really truly understood. We had been given some literature in the hospital from the charity Sands, and it included a card with details of the East Herts support group. We went along a month or so after Violet was born, meeting other parents who had lost babies in our local area, some years ago and some around the same time we lost Violet. I felt an immediate sense comfort and reassurance. I learnt so much from all of them, shared feelings of guilt, anger, disbelief, failure, love and pride. This club that none of us wanted to be in was a lifeline to me for a long time. I carry those precious babies in my heart and their parents in my contacts list.

The years since Violet’s birth are punctuated by the milestones that bereaved parents know all too well. Birthdays, holidays, Christmases, Mother’s Day, Father’s Day, returning to work. Imagining Violet as a growing child is a strange ritual: she would be walking, she should be talking, her first day at school. The list goes on and on and I don’t see it ever ending. The dreams you have for your children are dashed in an instant on a hospital bed a lifetime ago, yet they reappear as regular reminders of what you should have.
I took one more pregnancy test, this was just before Christmas in 2016. We didn’t feel happy when we saw that positive result, rather we dreaded nine long months with no certainty we would be able to bring this new baby home. With support, great medical care and lots and lots of Picnic bars, we got through 38 weeks of worry. Our fourth child, our baby boy, was born in August 2017. Abel means “breath of life” in Hebrew, and his name sums up how precious and precarious life is and how we feel about him and all his sisters. 

Six years on, I have found what many bereaved parents call a ‘new normal’. Life is good, and is worth living. I read a quote about grief which resonated with me: “the burden doesn’t get any lighter, only your legs get stronger.” Violet inspires me to spend my time with the people that really matter and to try not to worry about the things that don’t. I am by nature a positive person, and Violet’s legacy and my wonderful family and friends have made it possible to emerge from the darkest depths of grief with that part of me intact, although changed forever.
 
“Your absence has gone through me like thread through a needle. Everything I do is stitched with its colour”. W H Merwin, Seperation.

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